Schizophrenia is a complex mental illness that impacts how a person thinks, feels, and behaves. When not properly managed, its symptoms can challenge a person’s sense of self and connection to the world. However, with well-managed symptoms and a strong support network, people with schizophrenia can navigate daily life and pursue their goals.

 

A comprehensive care model can lead to better outcomes, with care partners — family members, friends, or others closely involved — playing a central role along with health care providers. They provide emotional, practical, and medical support, empowering their loved ones to manage their illness while maintaining their sense of identity. Health care professionals can enhance this model by engaging care partners as allies, fostering a collaborative and compassionate approach to care.

Emotional support

Care partners can provide a foundation for individuals with schizophrenia, offering strength during difficult times. For Ana Larrauri,* whose son was diagnosed with schizophrenia in his early 20s, managing the illness is a journey they navigate together. Larrauri emphasizes the importance of unconditional love in creating an environment of security and encouragement.

 

“Each part of this journey carries its own dilemmas and discoveries. Throughout, the most important thing is love — unconditional love,” said Larrauri. “They can manage the illness, but they don’t have to lose their sense of self or self-esteem. That love and support is what sustains them.”

 

Care partners benefit from developing strategies to empower their loved ones while also prioritizing their own well-being. Participating in therapy sessions alongside a loved one with schizophrenia can offer care partners deeper insight into needs and strengthen their ability to provide meaningful support. Connecting with support groups is another powerful way to gain perspective and resilience, as these communities foster mutual understanding and shared experiences.

“It’s important for care partners to take care of themselves,” said Larrauri. “It requires 150% of your time, energy, and soul. You have to stay well-grounded and hopeful. Being strong for yourself allows you to be strong for others.”

Daily practical support

Schizophrenia can cause cognitive symptoms that include problems with attention, concentration and memory. These symptoms make daily routines a challenge. Care partners may step in to assist with reminders, schedules, and other practical tasks, providing a sense of structure and stability.

 

Tyson McGuire* was diagnosed with schizophrenia while pursuing higher education in physics. He credits his mother’s support as a crucial component to helping him stay on track with his management plan and self-care.

 

“In the depths of my schizophrenia, I did isolate a lot. I didn’t take care of myself. I didn’t follow my care plan,” said McGuire. “And then I got compliant again, thanks in large part to my mom. She made sure I stayed consistent and supported me through it all. She was a really big help with that.”

Care partners often rely on tools like shared calendars to stay organized and ensure routines are followed. Finding a balance between offering help and encouraging autonomy is essential, as fostering independence can help individuals with schizophrenia maintain a sense of confidence and control.

Medical care support

Navigating medical care is often overwhelming for patients, and care partners play a critical role in managing appointments, understanding treatment plans, and ensuring medication adherence.

 

“Navigating the health care and mental health systems is difficult,” said Larrauri. “We saw 13 doctors before my son was diagnosed with schizophrenia, not because I wanted to, but because I was on a rudderless mission. You need a lot of strength to work through the health care system.”

Detailed treatment summaries and clear instructions from health care providers can help care partners manage this role effectively. Referrals to trusted specialists and collaborative communication with providers can help enable care partners to advocate for their loved ones with confidence and resilience.

Empowerment and advocacy support

Care partners act as advocates, helping their loved ones navigate complex systems while empowering them to pursue personal goals. Advocacy extends beyond schedules and appointments, encompassing education and empowerment. For Larrauri, learning alongside her son profoundly shaped their journey.

 

“My son read every book there was to read on authors with schizophrenia,” said Larrauri. “He handed them to me and said, ‘read, Mom, and you’ll get a much better perspective.’ And I did. Knowledge is everything. It changed both our perspectives. There’s no room for fear when there’s education. He became very savvy on the topic, and he remains a fierce advocate for the mental health community.”

 

McGuire underscores the sense of empowerment that comes from fostering strong relationships and a reliable support network. He actively seeks connections that inspire and motivate him to pursue his aspirations and define what success looks like for him.

 

“In spite of what was happening to me, I wanted to make sure I was still successful, and people could see me as being successful,” said McGuire. “It’s important to me to be sociable and interact with people in positive ways. I have good relationships with friends and colleagues. I’m not living under the specter of schizophrenia.”

 

Care partners play a key role in fostering this sense of empowerment. Health care providers can support care partners in this role by involving them in goal-setting discussions and ensuring care plans reflect their loved one’s personal aspirations. Advocacy tools — including information on legal rights, workplace accommodations, or educational opportunities — can further strengthen care partners’ ability to help their loved ones lead fulfilling, self-directed lives.

 

Live Your PosSCZible

Live Your PosSCZible is a national campaign launched by Bristol Myers Squibb and developed in close collaboration with the schizophrenia community to empower patients and care partners through education, peer support, and community resources.

 

The campaign highlights personal stories from care partners and individuals living with schizophrenia — including Larrauri and McGuire — offering insights into how they manage challenges, pursue ambitions, and find strength in their support systems. By spotlighting lived experiences, the initiative aims to reduce stigma, foster understanding, and inspire hope.