The World Health Assembly’s giant leap on rare diseases

The World Health Assembly’s giant leap on rare diseases A new resolution could change the future for people living with rare diseases   On May 24, the World Health Assembly, the governing body of the WHO, ratified landmark legislation that, if implemented fully, will change the future for people living with rare diseases.     It calls […]
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As Trump proposes NIH cuts, a top Merck executive sees fragility in a ‘super-highway for biomedicine’

As Trump proposes NIH cuts, a top Merck executive sees fragility in a ‘super-highway for biomedicine’ R&D chief and other biopharma leaders stop short of criticizing the administration       CHICAGO — Amid ongoing uncertainty around funding for the National Institutes of Health, and what it could mean for U.S. innovation, a top Merck executive […]
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RFK Jr.’s latest moves on vaccines

      You’re reading the web edition of D.C. Diagnosis, STAT’s twice-weekly newsletter about the politics and policy of health and medicine. Sign up here to receive it in your inbox on Tuesdays and Thursdays.       NIH is terminating research grants left and right, impeding early career paths and leading some young scientists to […]
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Participant in Rocket Pharmaceuticals gene therapy study dies

Rocket Pharmaceuticals said Tuesday that a patient had died in a trial studying its experimental gene therapy for a rare heart condition called Danon disease.     Rocket did not disclose the patient’s age, although the Phase 2 study aimed to enroll boys and young men. The company said it was still investigating the cause […]
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Republicans are proud of creating Medicare Advantage. Now some are urging reform amid runaway costs

Republicans are proud of creating Medicare Advantage. Now some are urging reform amid runaway costs       Republicans in Congress, long an unwavering source of support for privatized Medicare plans, are increasingly calling for reforms amid widespread evidence that health insurers are abusing the system to collect billions of dollars in unwarranted payments.   […]
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IBM’s Watson supercomputer recommended ‘unsafe and incorrect’ cancer treatments, internal documents show

IBM’s Watson supercomputer recommended ‘unsafe and incorrect’ cancer treatments, internal documents show Internal IBM documents show that its Watson supercomputer often spit out erroneous cancer treatment advice and that company medical specialists and customers identified “multiple examples of unsafe and incorrect treatment recommendations” as IBM was promoting the product to hospitals and physicians around the […]
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Understanding healthcare distributors and the industry’s role in the supply chain

Understanding healthcare distributors and the industry’s role in the supply chain       Distributors are the logistics experts of healthcare, connecting 1,200 manufacturers to nearly 330,000 providers and pharmacies. Collectively, the industry delivers 10 million medicines, vaccines, and healthcare products safely, efficiently, and reliably every day.   Here are three things to know about the industry. […]
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Reeling from Trump contract cuts, the National Academies prepares for ‘a fairly radical downsizing’

Reeling from Trump contract cuts, the National Academies prepares for ‘a fairly radical downsizing’ Leading advisory body on science and technology facing loss of up to 300 employees     Marcia McNutt, president of the National Academy of Sciences, speaks during the 2024 Nobel Prize Symposium at the Swedish Embassy in Washington. The National Academies […]
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